Data Access Requests

For transparency this tracker captures details of projects that have been approved by the North West London Data Access Committee (DAC).

All requests to use the Discover-NOW dataset come through the data access committee, which includes patient representatives. Below is a list of the latest projects that have been approved.

Requested Organisation Funder Project Description Project Type Target Disease & Population Approved DAC Date
Imperial College Healthcare NHS Trust Investigating management of lung nodules, and the impact of pre-diagnostic surveillance on health and economic outcomes. Research Lung Nodules Mar-22
NHS England Getting It Right First Time – Childhood Asthma Service Evaluation Childhood Asthma Mar-22
Imperial College London Characterising clusters of multimorbidity, trajectories and associations with clinical outcomes and healthcare utilisation Service Evaluation Multimorbidity Mar-22
Imperial College London Extension: Mixed methods evaluation of the impact of the shift to remote consultation in primary and secondary care in London Service Evaluation Remote Consultations Mar-22
Westminster City Council Extension: Borough Public Health Profiles and JSNA information Service Evaluation JSNA Mar-22
ICHP Extension: FARSITE Service Evaluation Feasibility Services Mar-22
ICHP Extension: Volunteering Programme Evaluation – NWL ICS Service Evaluation Volunteering Programme Evaluation Mar-22
ICHP Commercial Extension: Utilisation of real-world evidence in profiling the efficacy and safety for Ustekinumab (Stelara) in treating IBD patients in North West London Research IBD Mar-22
Imperial College Healthcare NHS Trust Enabling regional, rapid acute admissions data flows to support vaccine safety and vaccine effectiveness research Research Covid Vaccine Mar-22
Westminster City Council Westminster Planning Model Service Evaluation Westminster Feb-22
Chelsea and Westminster Hospital NHS Foundation Trust Evaluation of clinical parameters following COVID-19 infection in pregnancy (COpregVID) Research Covid in pregnancy Feb-22
ICHP Commerical Study to evaluate the healthcare needs of unpaid carers and looked after children Research Health Inequalities Feb-22
Lane Clark & Peacock LLP Commerical Extension: Estimating inequalities in unmet clinical need in patients with cardiovascular disease Research CVD Feb-22
ICHP Extension: NWL ICS Population health Management and Inequalities CORE20PLUS5 research Research Population Health Management Feb-22
Imperial College Healthcare NHS Trust Commercial Heart Failure Pathway Transformation: Health Economic Analysis. Research Heart Failure Feb-22
Imperial College London Characterising and preventing multimorbidity in NW London with linkage to the LOLIPOP cohort Research Multimorbidity in NWL South Asian population Jan-22
Harrow Borough-based Partnership ICP Dashboard for NW London & Harrow Council Service Evaluation Harrow Jan-22
Lane Clark & Peacock LLP Commercial Estimating inequalities in unmet clinical need in patients with obesity Research Obesity Jan-22
Imperial College Healthcare NHS Trust Commercial Heart Failure Pathway Transformation: Health Economic Analysis. Research Heart Failure Jan-22
Central and North West London NHS Foundation Trust KCW – increasing complexity analysis (older adult integrated approaches) Service Evaluation Older Adults Jan-22
Westminster City Council ID-180: Population Health Monitoring BAU Service Evaluation Covid Recovery Dec-21
Westminster City Council Autism in WCC and RBKC Service Evaluation Autism Dec-21
Westminster City Council AIR TEXT alternative Service Evaluation Heart or Lung Conditions Dec-21
Westminster City Council Grenfell Population Health Monitoring Service Evaluation North Kensington Dec-21
Westminster City Council Registered vs Census population comparison Service Evaluation Census Dec-21
Westminster City Council Air pollution and health Marylebone exploratory analysis Service Evaluation Air Pollution, Marylebone Dec-21
London Borough of Brent Children & Young People JSNA (CYP JSNA) Service Evaluation JSNA Dec-21
Westminster City Council Children’s Health Monitoring Service Evaluation Mental health, Covid and Obesity Dec-21
CLCH Understanding the impact of CLCH community services on patient health in NW London Service Evaluation CLCH community services Dec-21
Imperial College London Improving patient outcome prediction for patients based on health records Research Patient Outcome Prediction Dec-21
Midlands and Lancashire CSU Commercial ID-170: Extension: Local-level analysis for the REAL Centre second annual report Service Evaluation Analysis for the REAL Centre Dec-21
Midlands and Lancashire CSU Commercial Heart Failure Algorithm Validation and Calibration Research Heart Failure Dec-21
ICHNT Extension: Supporting early feasibility for non-commercial studies in North West London Research Early feasibility for non-commercial studies Dec-21
Imperial College London Commercial Extension: Use of artificial intelligence applied to routine clinical and administrative healthcare data to identify people at risk of serious acute illness from COVID-19 infection. Research Covid Dec-21
Imperial College London Extension: Investigating integrated health care systems for children and young people (CYP) Research Health care systems for children and young people Nov-21
Imperial College Healthcare NHS Trust Extension: Evaluation of the impact of the ‘total triage’ model using online consultations in general practice Research Online consultations Nov-21
Imperial College Health Partners Commercial A retrospective study: patient pathway and healthcare utilisation during the management of Obesity Research Obesity Nov-21
Imperial College London Social deprivation group differences in health care use by children in North West London Research Social deprivation in health care NWL (children) Nov-21
Imperial College London Extension: Impact of organisational models in general practice on patient safety and associated costs Research North West London Nov-21
Imperial College London Commercial Extension: Investigating multimorbidity among patients with depression and the relationship with secondary care utilisation Research Depression multimorbidity Nov-21
Imperial College Healthcare NHS Trust Commercial ID-164: Heart Failure Pathway Transformation: Health Economic Analysis Research Heart Failure Nov-21
West London NHS Trust WLT Older People’s Mental Health Community Transformation Service Evaluation Older people mental health Nov-21
Imperial College London Extension: Characterizing and Preventing Multimorbidity in NW London Research Multimorbidity in diabetes, pre-diabetes, hypertension, and depression Oct-21
London Borough of Hammersmith & Fulham Extension: Suicide Prevention Strategy Hammersmith & Fulham Service Evaluation Suicide prevention in London Borough of Hammersmith and Fulham Oct-21
Imperial College Health Partners Extension: Psychological factors predicting clinical outcome following bariatric surgery Research Bariatric surgery Oct-21
Imperial College London Extension: Care coordination for Adolescents in Crisis Service Evaluation Acute mental health for CYP in NWL Oct-21
Imperial College Healthcare NHS Trust Understanding the equity of access to diagnostics in NW London Service Evaluation Community diagnostic hubs in NW London Oct-21
London Borough of Hounslow Hounslow ICP: Population Health Management Workstream Research Hounslow Health and Care Oct-21
Chelsea and Westminster Hospital NHS Foundation Trust Evaluation of potential benefit of using machine learning algorithm to aid Atrial Fibrillation screening Research Atrial fibrillation Oct-21
Westminster City Council Older people and care home needs assessment Service Evaluation Care in Kensington and Chelsea and Westminster Oct-21
Westminster City Council Postcode sector ethnicity breakdown Service Evaluation Royal Borough of Kensington and Chelsea Sep-21
Royal Brompton Hospital, Guy’s and St. Thomas’ NHS Foundation trust Commercial Analysing Fungal Disease Epidemiology in the UK Research Fungal disease Sep-21
Imperial College London Type 2 Diabetes Exemplar: A Remote Care Service for North West London (T2DEx) Research Diabetes Sep-21
Westminster City Council Extension: Borough Public Health Profiles and JSNA information Service Evaluation Kensington and Chelsea and Westminster Sep-21
Imperial College Health Partners Commercial Extension: Treatment Resistant Depression Study Research Depression Sep-21
Imperial college Health Partners Commercial Extension: Utilisation of real-world evidence in profiling the efficacy and safety for Ustekinumab (Stelara) in treating IBD patients in North West London Research Inflammatory Bowel Disease Sep-21
Imperial College Health Partners Extension: Volunteering Programme Evaluation – NWL ICS Service evaluation North West London Sep-21
Brunel University London ID-140: Analysis of WSIC data to support London Borough of Hillingdon Joint Strategic Needs Assessment Service Evaluation Hillingdon Aug-21
Imperial College London, NIHR Applied Research Collaboration North West London ID-138: Mixed methods evaluation of the impact of the shift to remote consultation in primary and secondary care in London Service Evaluation Remote Consultations Aug-21
NHS North West London Clinical Commissioning Group ID-139: North Kensington Recovery (Grenfell) Programme Service Evaluation Grenfell Aug-21
Lane Clark & Peacock LLP Commercial ID-135: Estimating inequalities in unmet clinical need in patients with cardiovascular disease Research Cardiovascular Disease Jul-21
Midlands and Lancashire CSU (MLCSU) Commercial ID-136: Local-level analysis for the REAL Centre second annual report Service Evaluation North West London Jul-21
Brunel University London Commercial ID-134: Extension Request: Evaluation of the Effectiveness of the Integrated Business Case intervention in Hillingdon Research Hillingdon Jul-21
University College London Commercial ID-137: Extension Request: Personalised care analysis Ð phase two Research Patient Activation Measure Jul-21
Midlands and Lancashire CSU (MLCSU) Commercial ID-133: Extension Request: Heart Failure Algorithm Validation and Calibration Research Heart Failure Jun-21
Imperial College London ID-132: Pilot intervention for young self-harm patients in NWL Service Evaluation Self-harm Jun-21
Hounslow and Richmond Community Healthcare NHS Trust ID-131: Extension Request: Hounslow Integrated Care Partnership Service Evaluation Hounslow Jun-21
Imperial College Health Partners Commercial ID-130: Mental Health in Children and Young People Research Mental health Jun-21
Imperial Clinical Analytics Research & Evaluation (ICHNT) & NIHR Imperial Patient Safety Translational Research Centre ID 129. Extension request – Evaluation of the impact of the Ôtotal triageÕ model using online consultations in general practice Research Online consultations May-21
London Borough of Hammersmith & Fulham ID 126. Suicide Prevention Strategy Hammersmith & Fulham Service Evaluation Suicide in Hammersmith & Fulham May-21
Brent Council ID 127. Ethnicity and Deaths Service Evaluation Brent May-21
Imperial College London ID 125. Extension Request: Characterizing and Preventing Multimorbidity in NW London Research Multi-morbidity in North West London that stem from diabetes, pre-diabetes, hypertension, and depression May-21
Imperial College London ID 124. Extension Request: Impact of organisational models in general practice on patient safety and associated costs PhD Research North West London May-21
Imperial College London ID 123. Extension Request: Defining and Improving Access to Secondary Care for Venous Leg Ulcer Patients Research Chronic Venous Disease in NWL May-21
Imperial College London ID-115: Utilisation of real-world evidence in profiling the efficacy and
safety for Ustekinumab (Stelara) in treating IBD patients in
North West London
Research Inflammatory bowel disease Apr-21
West London NHS Trust ID-117: Extension Request: Metformin study Research – retrospective study Antipsychotics Apr-21
Royal Brompton & Harefield Hospitals NHS Trust ID-116: Extension Request: Quality of secondary prevention following percutaneous coronary interventions Research Cholesterol levels Apr-21
Imperial College London ID-119: Depression-related multimorbidity Doctoral research Multimorbidity depression Apr-21
West London NHS Trust ID-118: Extension Request: Treatment-resistant depression Restrospective analysis Depression in NWL Apr-21
The Hillingdon Hospital NHS Foundation Trust ID-121: WSIC asthma radar high risk reviews Service Evaluation Asthma in NWL Apr-21
Imperial College London ID-120: Adolescents in mental health crisis Service Evaluation Children and Young People at Chelsea and Westminster Apr-21
Chelsea and Westminster Hospital NHS Foundation Trust ID-113: Validation and calibration of algorithms predicting the risk of outcomes in heart failure patients Evaluation of patterns of healthcare Heart Failure Mar-21
Imperial College Health Partners ID-111: De-identified Data Access Request: FARSITE Translational Research Mar-21
Imperial College Health Partners ID-114: De-identified Data Access Request: Psoriasis Study Translational Research Psoriasis Mar-21
Imperial College Health Partners ID-110:Extension Request: Repeat Stroke Study Translational Research Atrial fibrillation Mar-21
Imperial College London ID-112: Investigating integrated health care systems for children and young people (CYP) Healthcare delivery and Planning North West London Mar-21
Imperial College Health Partners ID-109: De-identified Data Access Request: Use of WSIC data for volunteering evaluation. Healthcare delivery North West London Mar-21
Westminster and Kensington and Chelsea Local Authorities ID-106: Borough Public Health Profiles and JSNA information Local Authority Support to NHS delivery and Population Westminster and Kensington and Chelsea Mar-21
Imperial College Health Partners ID-108: Pressure Ulcers Project Real-world evaluation Pressure ulcer Mar-21
Imperial College Health Partners ID-105: Extension Request: To make the clinical and financial case for an ICS CVD programme that improves the management and prevention of CVD in NW Cardiovascular Disease in North West London Mar-21
Westminster and Kensington and Chelsea Local Authorities ID-107: to extract a summary of the GP registered borough populations Reconciliation of Local Authority and Borough Westminster and Kensington and Chelsea Mar-21
Brunel University London ID 103: De-identified Data Access Extension Request: To evaluate the effectiveness of the Integrated Business Case intervention in Hillingdon in reducing hospital admissions and improving clinical outcomes in patients with chronic conditions Health Policy Hillingdon Feb-21
North West London Health and Care Partnership ID 102: De-identified Data Access Request: RADAR Project Diabetes Feb-21
Imperial College London ID 99: NWL COVID-19 Research Project: Data Access Request Form: Understanding Returning Paediatric Emergency Attendance (U-RePEAt) Research Feb-21
Middlesex University ID 98: NWL COVID-19 Research project Data Access Request Form – School wastewater-based epidemiological surveillance system for the rapid identification of COVID-19 outbreaks (TERM) Research Covid-19 Feb-21
Imperial College Healthcare NHS Trust ID 100: De-identified Data Access Request: To understand more about the real-world pathway and burden of patients with diabetic foot ulceration and associated outcomes Healthcare delivery and Planning Diabetic foot ulceration Feb-21
Imperial College London ID 94: De-identified Data Access Extension Request: To assess the maternal vaccination uptake in the Northwest (NWL) Research and Healthcare Planning North West London vaccination Jan-21
Imperial College Health Partners ID 95: De-identified Data Access Request: To improve health and care services and reduce health inequalities in the UK Healthcare Planning Mental health Jan-21
Westminster and Kensington and Chelsea Local Authorities ID 96: De-identified Data Access Request: Covid-19 vaccine uptake monitoring and targeting Local Authority Support to NHS delivery and Population Health Covid-19 Jan-21
Imperial College Health Partners Commercial De-identified Data Access Request: NWL Health Research Register Request – RADAR De-identified Data Access Request: Dec-20
Imperial College Health Partners Commercial De-identified Data Access Request: 6 Months Extension: Targeting non-diabetic hyperglycaemia (pre-diabetes): evaluation of the Diabetes Prevention Programme (DPP) in North West London (NWL) De-identified Data Access Request: 6 Months Extension: Dec-20
Imperial College Health Partners Commercial De-identified Data Access Request – PHM Inequalities De-identified Data Access Request Nov-20
Imperial College Healthcare NHS Trust Commercial o examine the levels and primary types of multi-morbidity in Northwest London that stem from diabetes, pre-diabetes, hypertension, and depression and to assess the sub-populations at high risk for multimorbidity that are being served by NW London lifestyle change initiatives (National Diabetes Prevention Program and REWIND- diabetes remission programs) De-identified Data Access Request: De-identified Data Access Request: Jun-20
Imperial College Health Partners COMMERCIAL To use machine learning to rapidly understand the current treatment pathway for patients with hypercholesterolaemia and what are the factors associated with optimal management of these patients in line with established best practice NICE guidance De-identified Data Access Request De-identified Data Access Request Jun-20
Imperial College Health Partners Academic RADAR (Risk Algorithms for Decision support and Adverse outcomes Reduction) De-identified Data Access Request: De-identified Data Access Request: May-20
Imperial College Health Partners Commercial Quality of secondary prevention following percutaneous coronary interventions in De-identified Discover North West London cohort De-identified Data Access Request: De-identified Data Access Request: May-20
Imperial College Health Partners Commercial To support transformation, financial recovery and business planning including working towards ICPs/ICSs. De-identified Data Access Request: De-identified Data Access Request: May-20
Imperial College Health Partners Academic Targeting non-diabetic hyperglycaemia: evaluation of the Diabetes Prevention Programme (DPP) in North West London (NWL) De-identified Data Access Request: De-identified Data Access Request: May-20
Imperial College Healthcare NHS Trust commercial Does North West London Chronic heart failure care in adults vary by GP practice and patient group? A historical cohort study ResearchåÊ Heart FAILURE May-20
Imperial College Healthcare NHS Trust commercial To derive novel consumer insights to better understand patient needs and preferences for engagement including information on discrepancies in patient need and service provision. De-identified Data Access Request: De-identified Data Access Request: May-20
Imperial College Health Partners Commercial Characterising patterns of multimorbidity in individuals with diabetes for clinical guideline development and healthcare usage evaluation De-identified Data Access Request: De-identified Data Access Request: May-20
Imperial College Health Partners Commercial Investigating patient pathways for Chronic Myeloid Leukaemia in North West London De-identified Data Access Request Extension (Previous approval): De-identified Data Access Request Extension (Previous approval): May-20
Imperial College Health Partners Research Q Cancer Analysis Extension for 6 months Cancer Mar-20
Imperial College Healthcare NHS Trust Academic COVID19 surverllance analysis Research Covid-19 Mar-20
Imperial College Health Partners Research Extension of PAM Analysis 6 Months Extension PAM Mar-20
Imperial College Health Partners Commercial Request for the extension of access to the WSIC DID for the fulfilment of the ASC model proposed over 1 year previously De-identified Data Access Extension De-identified Data Access Extension Apr-20
Imperial College Health Partners Commercial Evaluation of healthcare service use and outcomes of people at the end of life in North – West London De-identified Data Access Request – De-identified Data Access Request – Apr-20
Imperial College Healthcare NHS Trust Commmercial Designing digitally enabled integrated care pathways, towards impactability and maximising population health. De-identified data access request Apr-20
Imperial College Health Partners Academic Retrospective Study: Defining and Improving Access to Secondary Care for Venous Leg Ulcer Patients- A Local Perspective Retrospective Study Ulcer Apr-20
Imperial College Health Partners Commercial To assess the maternal vaccination uptake in the Northwest (NWL) London population through use of the Whole System Integrated Care database (WSIC) De-identified Evaluation Request De-identified Evaluation Request Apr-20
Imperial College Health Partners Commercial Historical cohort study to investigate primary care diabetes provision among groups with different protected characteristics and from different health exclusion groups De-identified Data Access Request – De-identified Data Access Request – Apr-20
Imperial College Healthcare NHS Trust Academic Retrospective Study: Psychological factors predicting clinical outcome following Bariatric Surgery Retrospective Study: Bariatric Surgery Apr-20
Imperial College Health Partners Comercial Retrospective Study: Real world data evaluation of prescribing practices and safety data for Metformin Prophylaxis in patients prescribed anti-psychotic medication Retrospective Study: Metformin Apr-20
Imperial College Healthcare NHS Trust Academic A Contemporary Community Heart Failure Service Retrospective analysis Heart Failure Feb-20
Imperial College Healthcare NHS Trust Commercial Retrospective Study into the Journey of Non-Alcoholic Fatty Liver Disease Patients with Advanced Fibrosis in the Integrated Health and Social Care System in North West London Retrospective analysis Non-Alcoholic Fatty Liver Disease Feb-20
Imperial College Healthcare NHS Trust Commercial Retrospective Study into the Journey of Patients with Fabry disease in the Integrated Health and Social Care System in North West London Retrospective analysis Fabry disease Feb-20
Imperial College Healthcare NHS Trust Academic Does North West London primary care diabetes provision vary by social group? A historical cohort study Retrospective analysis Type 2 Diabetes Feb-20
Imperial College Healthcare NHS Trust Academic Retrospective Study into the Journey of Patients with Type 2 Diabetes in the Integrated Health and Social Care System in North West London Retrospective analysis Type 2 Diabetes Feb-20
Imperial College Healthcare NHS Trust Academic Prognostic features for renal and/ or vascular complications in people with type 2 diabetes mellitus Retrospective analysis Type 2 Diabetes Jan-20
Royal Brompton Hospital Commercial North West London Health Research Register North West London Hypertension Cohort – Consent to Contact Retrospective analysis Hypertension Dec-19
Imperial College Healthcare NHS Trust Commercial Determination of the burden of illness for patients with Hypogonadism in North West London Retrospective analysis Hypogonadism Oct-19
Royal Brompton Hospital Academic Understanding recurrent exacerbations of COPD Retrospective analysis COPD Sep-19
West London NHS Trust Academic Flagging of the West London personality disorder patient data into the WSIC data set and extraction of data on personality disorder cohort in North West London Retrospective analysis Mental Health Sep-19
Royal Brompton Hospital Academic Quality of Secondary prevention following percutaneous coronary interventions in North West London Retrospective analysis Coronary Disease Sep-19
Royal Brompton Hospital Academic The London COPD Cohort – Consent to Contact Consent To Contact Chronic obstructive pulmonary disease (COPD) Sep-19
Imperial College Healthcare NHS Trust Commercial Asthma prevalence, morbidity and risk factors in Children and Young People in North West London Retrospective analysis Asthma Jul-19
The Royal Marsden NHS Foundation Trust NHS INNOVATE UK Evaluating a digital tool for supporting breast cancer patients: A prospective randomised controlled trial Retrospective analysis Breast Cancer Jul-19
Imperial College Healthcare NHS Trust Commercial Retrospective Study into the Journey of Patients with Chronic Cough in the Integrated Health and Social Care System in North West London Retrospective analysis Chronic Cough Jul-19
Imperial College Health Partners Academic NHS Pathways for blood draw device Retrospective analysis All May-19
West London NHS Trust Academic COPD, Asthma and Depression Retrospective analysis Chronic obstructive pulmonary disease (COPD), Asthma, Depression Apr-19
London North West University Healthcare Trust Commercial Mapping the care pathways for ulcerative colitis patients in North West London Retrospective analysis Ulcerative Colitis Jan-19
Imperial College Academic WSIC Methodology paper Retrospective analysis All conditions/population in WSIC Sep-18
Hillingdon Hospital Trust Chelsea CWHT Academic Predictors of hospitalisation in the last months of life for people with cancer: retrospective cohort study using linked data Retrospective analysis End of Life Care and Cancer Jun-18
West London Mental Health NHS Trust Academic Study investigating bariatric surgery patients who have completed psychological questionnaires Cohort recruitment analysis Mental Health and Bariatrics Jun-18
Imperial College Healthcare NHS Trust Academic To study the journey of patients 12 months prior to liver disease admission across the whole integrated system Retrospective analysis Liver Disease – alcoholic steatohepatitis (ASH) May-18